Design: cross-sectional, anonymous online survey, run on JISC Online Surveys for four weeks (30 October to 30 November 2025. Studied population: adults aged 18 and over living in the UK with personal experience of any form of alopecia, current or past. Eligibility was self-declared. The unit of observation is the individual respondent.  Sampling: non-probability, self-selected sampling. Participants responded to non-targeted adverts on the Alopecia UK website and the social media channels of the School of Pharmacy and Biomolecular Sciences, Liverpool John Moores University. The advert asked people to share it with others, so some recruitment will have been by word of mouth. The target was a minimum of 30 responses; 163 were received. As participants self-selected, largely through an alopecia charity's networks, the sample is not representative of all people with alopecia in the UK.  Questionnaire: co-designed with members of the Alopecia UK Lay Research Panel, members of the wider alopecia community in the UK, a lived experience research assistant and the University of Liverpool Department of Sociology. It covered experiences of alopecia, diagnosis, treatment and support, access to services, awareness of and views on RNA-based therapies and quality of life. The 16 quality of life statements were informed by two established tools, Hairdex and WHOQOL-BREF but were written for this study and are not validated scales. Demographic questions were optional. The survey took about 15 to 20 minutes and included optional free-text questions, which are not part of this dataset.  Consent: participants read an online information sheet and ticked a consent statement before they could see the questions.  Data processing: responses were exported from JISC Online Surveys and anonymised as described in the ethics section. Questions allowing more than one answer were converted to one 0/1 variable per option. Full details are in the README and data dictionary.