The data were collected through an anonymous online survey approved by the Liverpool John Moores University Research Ethics Committee (reference: 25/PBS/005). Participants gave informed consent before taking part, and no names, contact details or other direct identifiers were collected. The survey included health information and ethnic group, which are special category data under UK GDPR, so further steps were taken to reduce the risk of indirect identification before sharing. All free-text responses were removed, as these could contain identifying details such as exact ages, places or the names of services and support groups. Survey platform response IDs were replaced with sequential participant codes. Ethnic group categories with very few respondents were combined into broader groups so that no category contains a single participant. Age is recorded only in bands. The remaining data are anonymous and are shared openly under a CC BY 4.0 licence. Users must not attempt to identify any participant. The free-text responses are held securely by the research team and are not available.